While you can manage lupus with treatment, there is no cure. Symptoms include pain and inflammation in the joints, fatigue, hair loss and kidney issues. Lupus is described as a chronic autoimmune disease that can damage any part of the body, and there is a wide range of how it affects people. “So, I wanted to create a book that made women feel heard.” It was a lonely, scary time and I knew no one who had lupus and when I got the diagnosis, I was just basically given my medication and shoved out the door,” Chay said. “I started a book because it’s what I needed when I was diagnosed. And first, right, a quick Google search to be like ‘oh my gosh this is a terrible disease to have,’ and then the reality began to kick in,” Chay said.Ĭhay said, knowing she was immunocompromised during this time added to what she was feeling. “When I got that diagnosis, it was really kind of a slap in the face of the reality. Although the declaration expired, a community member dealing with lupus said safety precautions don’t stop.Īmanda Chay, from Cary, said she was diagnosed with lupus at the beginning of the COVID-19 pandemic.
This all comes as the Federal COVID-19 Public Health Emergency Declaration ended earlier this month. A lupus advocate explains that immunocompromised people can still get sick easily.Although the Federal COVID-19 Public Health Emergency Declaration expired, safety measures are still important for some.The CDC updated its COVID-19 guidance for those who are immuncompromised.
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